Hi all

I'm sorry to say the ra monster is climbing out of it's box having been zapped only a month ago by the jolt of steroids.
I'm on a hefty regime of pain killers now
Paracetamol every 4 hrs (max 8 a day) I then have 8 gabapentin and 50 mg of zomorph in the morning, another 50mg at night.

That's on top of the other meds of steroid etc

I do have oramorph but try and avoid taking it
I'm in a lot of pain all the time

Then there is breakthrough pain on top. In the night when I wake I feel I'm in a vice, and desperately take . I try not to cry

Oh dear im waffling now!
Can I ask if these meds can make you feel fatigued? I'm physically exhausted. I don't really want to sleep but could dose all day if I could.
At night I wake a few times as cant turn myself over and so wake and physically manipulate my legs over and turn the rest of me.

I'm not sure what to say now so will shut up.
The gp has actually referred me to the pain clinic st the hosp not least because I think I may gave more knee chopping about this year and we have to plan for better pain control than after the last lot of surgery.

Does anyone else struggle to balance stuff?

Hi Jenni

This disease just shows no compassion whatsoever!!

I really feel for you, the horrendous ongoing pain you are suffering. There just doesn't seem to be any relief for you. Persistant pain is just so physically draining, I think the meds do cause fatigue but it's more to do with just not been able to get any pain relief, it's exhausting!!!

I take so many painkillers but they just touch the surface of it, at night when the pain is unbearable I just want to leave my body for a while. No one understands this unless they have been there.

I don't know what to say other than you show immense courage and inspiration to everyone on this site.

Thinking of you with love
Rebecca x

Side effects of gabapentin include somnolence & fatigue
Side effects of zomorph include sedation

Jenni

I am so sorry that you are in so much pain again. Yes both the medications and actual physical pain can be so draining. I have heard wonderful things about pain management clinics. People I know who have been at the end of their tether with pain have had remarkable results. Some still with the same medication but a different regime of taking it and some with different medication. I will keep my fingers crossed for you.

You really need to get all of this under control before considering any more surgery. The anaesthetic for an operation alone takes about 12 months to get out of your system and can also make you feel quite unwell for some time.

Keep going my lovely.

Jackie
xx

Dear jenni, I just wanted to say I am sorry you are in so much pain. I really hope you get some relief soon and that you have caring people to support you in every way. X

Hi Jenni

I hope you are feeling a bit better today. I don't know what else to say. Whatever I say is just words but my thoughts and prayers are with you every day. God bless.

Sheila x

Hello Jennie

Just caught up on this post. I do hope that you are feeling much better now. You have so
much to put up with.

~Take care